Well, last night I struggled to get a good nights sleep, I could tell it was a busy night for the hospital staff, I got a new roommate around 3am which they questioned him until around 4am this morning, this always helps me to get a good nights sleep...NOT! Today was a disappointing day. I have been feeling good and we believed that the doctors had determined the correct dosages for the issue with the low blood pressure causing me to feel light-headed when I stood up. My Creatinin function has stayed high at around 2.8 where it should be somewhere closer to 1.5 for me. Yet the doctors from the kidney team felt comfortable that if my number stabilizes they would feel comfortable letting me go back to the Hope Lodge. Well, throughout the day we waited and as suspected they found other holes in my numbers to poke at. My Hemoglobin number came in at 7.9 and because of this they opted to give me a blood transfusion. I thought for sure with this being done I would be allowed to leave. We were made aware of this around 1130a but it wasn't until around 230p that they actually started the transfusion which takes typically about 2 hours. The Nurse Practitioner said that my doctor would be stopping by to make the final decision around 4pm. We have grown accustomed to my doctor running behind, he showed up around 5pm and to our surprise it was his decision that it was in my best interest to stay again tonight, he would prefer to see the Creatinin number come down rather than plateau as it had. He had taken the recommendation from the kidney team, but he actually has more experience with these issues than them. Dr. Feldman said that he wanted to make sure that there is no long term damage done to my kidneys.
Obviously, they will be watching my kidney function extremely closely in the coming weeks leading up to my second round of high dose chemo which is scheduled to commence on June 5th. Dr. Feldman said that if my Creatinin level remains elevated there is a possibility that they would take me off of the clinical trial and put me in the current protocol treatment. He said that this would be discussed in depth with the oncological team here.
Jamie ran to McDonald's for dinner for me, I was starving the hospital food at this point is just a complete turn off and it doesn't help that I am taking 8 salt tablets 3 times a day to help combat the issues I am having with my health. I snarfed down a Quarter Pounder w/ Cheese and a 10-Piece McNuggets no problem. Although, I would have to say the indigestion is starting to kick in.
Good night for TV here in NYC, Interleague baseball Yankee vs Phillies. Phillies up 6-1 in the top of the 7th, Raul Ibanez (former KC Royal) just took Ching Ming Wong....DEEP! Game 2 of the NBA Eastern Conference finals starts in 5 minutes.
All in all today was a very frustrating day, I thought I would be back at the Hope Lodge with Jamie. We sat around all day waiting to be told that I could leave only to be told I need to stay another night at 530p. I think I will be allowed to go home tomorrow as long as my Creatinin number doesn't go up. Everyone here on the 5th floor is getting to know me as somewhat of a fixture here, today is a week that I have been couped up in room 531B. The activities lady came by to notify me that there will be a woodworking workshop on the 15th floor tomorrow morning at 1030a. I told her I have had it on my calendar since Monday. Actually I hope that I am long gone by that time, although I will likely still be here waiting.
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Is Mr. Pauls teaching the woodworking class because if you don't recal he lost his two middle fingers on a band saw so I wouldn't trust him to teach you anything. And he totally screwed up the clock I made.....I don't know why he got so mad at me for making a paddle because I told him I wouldn't hit him with it!!!! Ha, ha!!!!!
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